Of the many horror stories that I see on social media about traveling with a disability, the ones that usually scare me the most relate to getting kicked off of an airplane or having a terrible time at security. So, to assist passengers with disabilities or special healthcare concerns, the TSA has created a program called TSA Cares that allows you to call in 48 hours prior to check-in and request assistance getting through security.
I called TSA Cares yesterday (1-855-787-2227) at their Kentucky-based offices and spoke with an incredibly helpful young man about how I could get through the TSA security lines with my son with the least amount of worry. He told me that at any time, you can request “going to the front of the line” with a person with a disability. Make this request to the TSA supervisor at the airport you are using. Ask if there is a Persons With Disability (PWD) line that you can utilize. At some airports, they will direct you to the TSA fast pass lane. TSA did not require this, but I also always travel with my son’s doctor’s diagnosis letter with me along with passports and IDs. Since autism is an invisible disability, I like to have all of my paperwork handy so that there is no confusion about the need for accommodations.
And if you are inclined to complain that people with autism should have to wait in line like everyone else, that’s like holding a grudge that those with physical disabilities get the best parking spaces. P–u–leez. Give me a break.
It’s really really hard to travel with autism and every effort should be made to be inclusive and helpful to those traveling with challenges. We all want to experience life, and travel is a part of life.
My next phone call is to the Vancouver Airport to see what kinds of accommodations are available for autism as we make our way for the first time through customs and immigration. Wish us luck.
Last spring break, when my son and I were en route to Salt Lake City on our way to the National Ability Center ski program in Park City, UT, we sat in front of a representative from Nike Shoe. I talked to him about how amazing my son was and yet was still dependent on parents or an aide to tie his shoes for him. And low and behold, Nike was already working on this, a shoe called the FLYEASE. Another really important piece of the independence puzzle for people with disabilities–shoes that work for people with motor challenges! Click here to read about it. The shoe was inspired by a teenager with cerebral palsy that wrote a letter to Nike asking for their help in creating a shoe that he could put on himself once he went to college. It’s a great story.
My son has since learned to tie his own tennis shoes, which as a teenager, is a great great victory for all of us. It means he is less dependent on an aide or a caregiver for getting dressed. He still wears all elastic clothes because zipping and snapping are difficult with his low motor planning, but he can now get his shoes on himself. Last year, he bought his very first pair of lace shoes.
Anyone with a disability can probably relate to my son’s sense of accomplishment when a new task that has been very hard to accomplish (years of occupational therapy spent trying to master this skill) is finally conquered. The first time he was able to tie something was on a hoodie he was wearing. We were in a restaurant and he screamed, “Mom, I am cured of my untying!” We are so proud of him!